Our Focus
The West Virginia Chapter of the National Bleeding Disorders Foundation, WVNBDF, provides education, support, awareness, and advocacy for the bleeding disorder community.
We are the leading resource for West Virginians affected by bleeding disorders. You can count on us to ensure your voice is heard. It’s with your help that we can make a difference. Learn more and get involved.
Our Mission ... Into Action
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We provide mission-focused experiences through education, support, community connections, and fun for those affected by bleeding disorders.
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We provide year-round events and fundraisers to spread awareness, educate, and generate crucial resources in support of our mission. Hope to see you at our next event!
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AdvocacyWe fight to protect access to quality healthcare and treatments we need to live healthy lives, but we can't do it without your voice. Discover how you and your family can make a big difference by joining our advocacy efforts.
News Articles
The National Bleeding Disorders Foundation (NBDF) is launching Educate to Elevate, a multi-year initiative to raise public awareness, educate communities, and improve healthcare access for individuals with bleeding disorders.
The campaign features celebrity advocates including Melora Hardin, Amy Jo Johnson, Jonathan Frakes, Jason Ritter, and Greg Grunberg, alongside medical experts and people living with bleeding disorders, amplifying the experiences and challenges faced by people who live with these disorders every day.
Why This Matters
The National Bleeding Disorders Foundation (NBDF) offers multiple funding opportunities for bleeding disorders researchers across all career stages and disciplines. Through the Judith Graham Pool Postdoctoral Research Fellowships, the Sanofi-sponsored Career Development Award, the Takeda-sponsored Clinical Fellowship, and the Excellence Fellowships, NBDF’s grant programs support diverse research needs, including basic science, clinical projects, and innovative technologies.
After decades of research during which gene therapy was considered a distant goal, FDA-approved gene therapy options for hemophilia are now available in the United States. As these therapies enter real-world clinical practice, patients and care teams are navigating new access and coverage considerations that differ from more traditional treatment models.
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