PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616
Contact
PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616
Contact

Event Calendar

We provide year-round events and fundraisers to spread awareness, educate, and generate crucial resources in support of our mission. Hope to see you at our next event!

 

Hemlibra with Genentech

Tuesday, September 23, 2025

Come join us in Charleston for a Dinner with our friends from Genentech. We will get to learn the importance of Hemlibra and have an amazing dinner together!

Contact Info
Kristen Dansereau
6812129255

Spokes Men for Bleeders

Saturday, October 4, 2025
New Life Community Church, 4102 Tabler Station RD, Inwood WV 25428

Spokes Men for Bleeders is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNBDF. In turn, Steve & Lisa partner with WVNBDF and sponsors to throw a finish line party for the riders and community members.

Contact Info
Kristen Dansereau
6812129255
Related Links

Hympavzi with Pfizer

Thursday, October 9, 2025
6:30 pm7:30 pm

Come out and join us for a YUMMY dinner in Morgantown with our friends from Pfizer and Next Step Specialty Pharmacy. Pfizer will be talking about the in and outs of Hympavzi!

Contact Info
Kristen Dansereau
6812129255

Virtual Holiday Party

Thursday, December 4, 2025

More info coming!

Contact Info
Kristen Dansereau
6812129255

Resource Link

PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616
Contact
Privacy Policy

Privacy Policy

  1. What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
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  7. Notice of New Services and Changes Occasionally, we may use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. As a user of our website, you will be given the opportunity to notify us of your desire not to receive these offers by clicking on a response box when you receive such an offer or by sending us an email request.
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  9. How Do We Protect Your Information? Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration or destruction. Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information. Employee Access, Training and Expectations -- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
  10. How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
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Terms & Conditions

Terms & Conditions

Donation Refund Policy

We are grateful for your donation and support of our organization. If you have made an error in making your donation or change your mind about contributing to our organization please contact us. Refunds are returned using the original method of payment. If you made your donation by credit card, your refund will be credited to that same credit card.

Automated Recurring Donation Cancellation

Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.
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