The Walk is about YOU! It’s an awareness event- to teach people about bleeding disorders that affect YOUR loved ones. It’s a community gathering – to have fun with other people in YOUR community. It’s a fundraiser- to provide programs and services that YOU take part in.

When you walk you make a huge impact. All funds raised in West Virginia stay in West Virginia and are used for:

Programs like Camp Winaca HemoVon and the Annual Education Retreat
Emergency financial assistance for families in need
Advocacy at our state and national capitol
Research into finding cures for bleeding disorders

Register with the link below!

Come out and join us while we enjoy some family fishing fun with Brandon Young who will be conducting the event. Brandon Young is the founder of Country Boy fishing, a program that coaches children with bleeding disorders, including hemophilia, to become the best fisherman they can be. whether for fun or to pursue a college scholarship. He developed a passion for fishing at the age of 3 after being introduced to it by his grandmother. Brandon is also a father and enjoys sharing his love for fishing and outdoor activities with his family.

Come join us in Charleston for a Dinner with our friends from Genentech. We will get to learn the importance of Hemlibra and have an amazing dinner together!

Spokes Men for Bleeders is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNBDF. In turn, Steve & Lisa partner with WVNBDF and sponsors to throw a finish line party for the riders and community members.

Come out and join us for a YUMMY dinner in Morgantown with our friends from Pfizer and Next Step Specialty Pharmacy. Pfizer will be talking about the in and outs of Hympavzi!

More info coming!