We provide year-round events and fundraisers to spread awareness, educate, and generate crucial resources in support of our mission. Hope to see you at our next event!
Camp Winaca HemoVon
Registration is Open! See link below.
New families should click on "New Families", returning families login to register. Families can find Camp Winaca HemoVon listed under the two-week sessions, even though camp is one week.
Once you register initially, you can go back into your account to fill out all forms. A medical provider will need to complete the medical provider form. A copy of the Camper Parent Handbook is also on the site to review.
Virtual Health Series
Come join us for a virtual health event on Saturday June 14 from 9am to 11am. Learn how you can make tasty, healthy breakfast shakes with Kevin from Paragon and then join us for tips and tricks to help improve your flexibility, strength and wellbeing with a chair yoga session with Octapharma's own Mike Z! Register today!
Summer Catch Up
This year’s Summer Catch Up will be an exciting collaboration with the Western PA Bleeding Disorders Foundation. We will host a joint event at beautiful Oglebay Resort in Wheeling WV. You and your family will have the opportunity to learn and connect with families in the morning and enjoy all that Oglebay Resort has to offer in the afternoon.
Please reach out to Kristen for info about travel assistance.
NBDF Bleeding Disorders Conference
Mark your calendars for NBDF’s 77th Bleeding Disorders Conference, August 21-23, 2025, in beautiful Aurora, Colorado! This premier event will unite patients, families, and healthcare professionals for three days of insightful educational sessions, valuable networking opportunities, and a dynamic exhibit hall featuring leading organizations and research presentations. Learn more with the link below.
WV Unite for Bleeding Disorders Walk
The Walk is about YOU! It’s an awareness event- to teach people about bleeding disorders that affect YOUR loved ones. It’s a community gathering – to have fun with other people in YOUR community. It’s a fundraiser- to provide programs and services that YOU take part in.
When you walk you make a huge impact. All funds raised in West Virginia stay in West Virginia and are used for:
Programs like Camp Winaca HemoVon and the Annual Education Retreat
Emergency financial assistance for families in need
Advocacy at our state and national capitol
Research into finding cures for bleeding disorders
Register with the link below!
Spokes Men for Bleeders
Stay tuned for more info!
Virtual Holiday Party
More info coming!
