Camp Winaca HemoVon is a 5-day residential camp for children ages 7-17 who have either a bleeding disorder or a childhood cancer diagnosis. Mission: To positively impact and enrich the lives of children diagnosed with cancer or bleeding disorders by offering a camp experience, independent from their family, in a medically safe and educationally supportive environment while promoting personal growth, self-worth, self-reliance and creativity through activities and the development of personal relationships that will carry over to their daily lives and throughout their lifetime

To register for camp you must make an account at the website linked below and select Camp Winaca HemoVon from the list of available camp weeks.

Join us for an informative evening focused on the management of von Willebrand Disease (VWD) and the role of Vonvendi® (von Willebrand factor [Recombinant]) in treating patients with this complex bleeding disorder.

July 14 | J's Smokin' Rib & Brewhouse | Morgantown, WV

This premier event will unite patients, families, and healthcare professionals for three days of insightful educational sessions, valuable networking opportunities, and a dynamic exhibit hall featuring leading organizations and research presentations.

We will host a joint event with the Western Pennsylvania Chapter at beautiful Oglebay Resort in Wheeling WV. This will be a wonderful opportunity for community members to come together for a day of fun and learning with members of the bleeding disorders community from Pennsylvania.

We have an incredible line up of education sessions at our Regional Summer Education Day! Topics include insurance, participation in sports in the era of novel therapies, and mental wellness and resilience!

Transportation assistance is available upon request, and a limited number of hotel rooms are available on Friday evening for guests traveling 150 miles or more.

On-site childcare will be provided during the educational programs!

Register by August 1. Include food allergies or dietary restrictions, the ages of any children attending, and whether you are requesting transportation assistance or hotel accommodations.

The Walk is about YOU! It’s an awareness event- to teach people about bleeding disorders that affect YOUR loved ones. It’s a community gathering – to have fun with other people in YOUR community. It’s a fundraiser- to provide programs and services that YOU take part in.

When you walk you make a huge impact. All funds raised in West Virginia stay in West Virginia and are used for:

Programs like Camp Winaca HemoVon and the Annual Education Retreat
Emergency financial assistance for families in need
Advocacy at our state and national capitol
Research into finding cures for bleeding disorders

This year’s Spokes Men for Bleeders will be part of a Fall Festival for the entire family. This is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNBDF. In turn, Steve & Lisa partner with WVNBDF and sponsors to throw a finish line party for the riders and community members.

Families from all over the state will join us for a day of fun crafts and snacks, while they
compete to win prizes! It’s a great way to wrap up the year while bonding and is the last
chance to see your WVNBDF Chapter family before the holidays!