Chapter Advisory Council
Our council represents a cross-section of our community and is an advocate for the bleeding disorders community. The members work hard to ensure long-term sustainability of the organization so that the funds raised directly affect results.
If interested in joining our Advisory Council please contact us.
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Lisa NickLisa became a School Bus Operator for Berkeley County, WV in 2012 after being a stay at home mom for ten years! Lisa has three children, two of which have a severe bleeding disorder. Her husband, Steve and herself created a fundraising team called "Spokes Men For Bleeders" in 2015 to help raise awareness and funds for the WV Chapter of the National Bleeding Disorders Foundation. Her husband and a group of cyclists ride one hundred miles in one day for the cause, while she plans and executes a Finish Line Party for anyone in the community interested to attend. The event is no small task and takes months of planning for the event to be a success each year. As of 2024, their fundraising team has raised nearly $100,000 for the WV Chapter of the NBDF! Lisa and Steve own Pro Landscapes LLC in Inwood, WV, Lisa handles all the office work; Social Media, Advertising, Billing, Filing, Phone Calls, etc.
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Kelly CoenKelly Coen grew up in the northern panhandle of West Virginia. After graduating from John Marshall High School she attended West Virginia University where she graduated with Bachelor's of Science degrees in Electrical Engineering and Computer Engineering. She currently works as a Senior Software Test Engineer with Leidos. A big believer in giving back to the community, Kelly participates in school organizations and helping with dance recitals. In her spare time, Kelly enjoys spending time outdoors with her family hiking and running. She also enjoys reading and scrapbooking. Kelly and her husband, Mike, have four children (Alyssa - 21, Ryan - 19, Abbie - 18 and Paige - 16). Paige was diagnosed at age 7 with Von Willebrand Type 1. Kelly currently resides in the Cheat Lake area of Morgantown, WV.
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Megan SinyardHi, I'm Megan. I am a stay a home mom of 3 children whom I homeschool. My husband Alex works out of town during the week, so a lot of the time it’s just the kids and I but when he is home it all about family time and making the most memories we can.
We enjoy camping, having fires in our back yard at our fire pit, pool days, taking trips, baking and cooking together, having our friends over for cookouts, movie nights at the fire pit, or really anything to make memories with our family and friends. I love being a part of the Chapter to learn more about hemophilia due to my best friend's son being a severe hemophiliac and also in hopes of being able to educate more people about it by making a difference.
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Kalyn GibsonHi, I’m Kalyn. I am a stay at home mom. I have a 19 year old son and a 13 year old daughter who was diagnosed with mild hemophilia. Her father, my husband was diagnosed as a baby with moderate hemophilia.
I love being involved with my local chapter! They have done so much to help us learn more about this disorder and showed us many great treatment options!
I enjoy running my daughter to her many activities including showing horses and sheep. In my spare time I love to hike the many trails in WV and curl up on the couch and crochet!
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Kim WiltHi, I am Kim Wilt. I am a mom of three, one of which has Severe form of Von Willebrands Disease,.1C. She got diagnosed when she was 3 and our main symptom was and still is spontaneous and frequent nosebleeds.
West Virginia was the first bleeding disorder foundation that we came across and since we have joined the chapter we have continued to learn how to manage and advocates for our healthcare.
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Bernard Slater Jr.Hi, I’m Bernard Slater Jr. I live in Charleston, West Virginia, and I have lived with hemophilia for more than 42 years. My connection to the bleeding disorders community is deeply personal. Hemophilia has shaped my life, but it has also connected me to a community of people and families who understand what it means to live with a condition that is often misunderstood.
Hemophilia is part of my family’s story. My uncle Jeff was diagnosed after being hit by a truck and nearly bleeding to death. Because of what our family learned from his experience, my cousins Jason and Mike and I were also diagnosed. The four of us were the “four amigos.” Some of my favorite childhood memories are of riding to clinic appointments together, playing and laughing along the way, even when we knew we were going to get shots. Having each other made those experiences a little easier and showed me how much it matters to have people in your corner.
My life has also been shaped by challenges, recovery, and second chances. Rebuilding my life taught me the value of being met with compassion and believing that a person’s past does not have to define their future. Those lessons are a big part of why I have dedicated so much of my life to helping people find support, build relationships, and discover opportunities they may not have known were possible.
My work has taken me into healthcare, community outreach, workforce development, and public service. I have served on Charleston City Council, worked with people experiencing homelessness, helped bring healthcare and resources into communities through a mobile health unit, and worked in the bleeding disorders field with Next Step Specialty Pharmacy. Today, I work with Charleston Job Corps students, helping them connect with employers and gain work experience as they prepare for their futures.
Serving on the West Virginia Chapter’s Advisory Council is an opportunity to give back to a community that has been part of my life from the beginning. I want to help children, adults, and families living with bleeding disorders feel informed, supported, and heard. Whether I am sharing my own experiences, connecting someone to a resource, or simply listening, I hope to remind people that they do not have to navigate this journey alone.
Chapter Staff
Bottom line, our staff is committed to make sure your voice is heard. If it concerns our cause, rest assured our staff is on it.
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Kristen Dansereau-Udell: Chapter Outreach CoordinatorHi I'm Kristen. I was born in Morgantown, WV and married my high school sweetheart in 2017. I have three children. Sophia was born in 2013 with severe Congenital Heart Disease and underwent multiple heart surgeries at Pittsburgh Children's Hospital. Today she is thriving and monitored on a regular basis. In 2016, my husband and I welcomed our second daughter Gabriella, and on March 14, 2020 our son Mason. At one day old he was diagnosed with severe Hemophilia A, which was not a shock since I'm a carrier of the hemophilia gene.
In my free time I am a local youth soccer coach and love to volunteer in my community and with anything my children do. I am passionate to work with children in any way I can. I got involved with WVNBDF when my son went through some trauma that resulted in a head bleed at 2 days old which then led to me getting in contact with the chapter.
Email: kdansereau@bleeding.org
