Chapter Advisory Board
Our board represents a cross-section of our community and is an advocate for the bleeding disorders community. The members work hard to ensure long-term sustainability of the organization so that the funds raised directly affect results.
If interested in joining our Advisory Board please contact us.
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Lisa Nick
Lisa became a School Bus Operator for Berkeley County, WV in 2012 after being a stay at home mom for ten years! Lisa has three children, two of which have a severe bleeding disorder. Her husband, Steve and herself created a fundraising team called "Spokes Men For Bleeders" in 2015 to help raise awareness and funds for the WV Chapter of the National Bleeding Disorders Foundation. Her husband and a group of cyclists ride one hundred miles in one day for the cause, while she plans and executes a Finish Line Party for anyone in the community interested to attend. The event is no small task and takes months of planning for the event to be a success each year. As of 2024, their fundraising team has raised nearly $100,000 for the WV Chapter of the NBDF! Lisa and Steve own Pro Landscapes LLC in Inwood, WV, Lisa handles all the office work; Social Media, Advertising, Billing, Filing, Phone Calls, etc.
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Kelly Coen
Kelly Coen grew up in the northern panhandle of West Virginia. After graduating from John Marshall High School she attended West Virginia University where she graduated with Bachelor's of Science degrees in Electrical Engineering and Computer Engineering. She currently works as a Senior Software Test Engineer with Leidos. A big believer in giving back to the community, Kelly participates in school organizations and helping with dance recitals. In her spare time, Kelly enjoys spending time outdoors with her family hiking and running. She also enjoys reading and scrapbooking. Kelly and her husband, Mike, have four children (Alyssa - 21, Ryan - 19, Abbie - 18 and Paige - 16). Paige was diagnosed at age 7 with Von Willebrand Type 1. Kelly currently resides in the Cheat Lake area of Morgantown, WV.
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Megan Sinyard
Hi, I'm Megan. I am a stay a home mom of 3 children whom I homeschool. Zoey is my 10-year-old, in 4th grade and loves dance. She currently takes 6 dance classes and tumbling classes. Grayson is my 7 years old in 1st grade and loves being outdoors riding his bike, scooter, and playing with his sisters. Kynlee is my 5-year-old, in kindergarten and also loves dance. She is in 2 dance classes and tumbling. My husband Alex works out of town during the week, so a lot of the time it’s just the kids and I but when he is home it all about family time and making the most memories we can.
We enjoy camping, having fires in our back yard at our fire pit, pool days, taking trips, baking and cooking together, having our friends over for cookouts, movie nights at the fire pit, or really anything to make memories with our family and friends. We have 3 Saint Bernard’s Hulk, Xena, and Belle. I love being a part of the Chapter to learn more about hemophilia due to my best friend's son being a severe hemophiliac and also in hopes of being able to educate more people about it by making a difference.
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Kalyn Gibson
Hi, I’m Kalyn. I am a stay at home mom. I have a 19 year old son and a 13 year old daughter who was diagnosed with mild hemophilia. Her father, my husband was diagnosed as a baby with moderate hemophilia.
I love being involved with my local chapter! They have done so much to help us learn more about this disorder and showed us many great treatment options!
I enjoy running my daughter to her many activities including showing horses and sheep. In my spare time I love to hike the many trails in WV and curl up on the couch and crochet!
Chapter Staff
Bottom line, our staff is committed to make sure your voice is heard. If it concerns our cause, rest assured our staff is on it.
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Kristen Dansereau-Udell: Administrative Assistant
Hi I'm Kristen. I was born in Morgantown, WV and married my high school sweetheart in 2017. I have three children. Sophia was born in 2013 with severe Congenital Heart Disease and underwent multiple heart surgeries at Pittsburgh Children's Hospital. Today she is thriving and monitored on a regular basis. In 2016, my husband and I welcomed our second daughter Gabriella, and on March 14, 2020 our son Mason. At one day old he was diagnosed with severe Hemophilia A, which was not a shock since I'm a carrier of the hemophilia gene.
In my free time I am a local youth soccer coach and love to volunteer in my community and with anything my children do. I am passionate to work with children in any way I can. I got involved with WVNBDF when my son went through some trauma that resulted in a head bleed at 2 days old which then led to me getting in contact with the chapter.
Email: kdansereau@hemophilia.org