PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616

Event Calendar

Speak Your Hem Truth-Virtual Event

Thursday, September 24, 2026
6:30 pm7:30 pm
Zoom link will be provided once you register.

Join us for a virtual educational event presented in partnership with Novo Nordisk and the WPA Chapter, focused on helping members of the hemophilia community feel more informed, confident, and prepared to have meaningful conversations with their healthcare providers.

During this conversation, we’ll explore:

Challenges people may experience with their current hemophilia A management and administration.
The importance of discussing breakthrough bleeds and concerns about bleed protection with your healthcare provider.
How tracking treatment experiences—including dosing, bleeds, and symptoms—can help you communicate your experiences more effectively.
The value of staying connected with the broader hemophilia community and keeping up with available resources.
How to recognize when you may be making compromises between treatment convenience and bleed protection.
You deserve fewer compromises. Your experiences matter, and speaking up can help you work with your healthcare team to find an approach that better fits your needs.

This virtual event is an opportunity to learn, ask questions, and connect with others in the hemophilia community.

For additional educational resources, visit SpeakYourHemTruth.com.

PO Box 4214
Morgantown, West Virginia 26504
Phone 304-212-2616

© National Bleeding Disorders Foundation 2026

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