The Walk is about YOU! It’s an awareness event- to teach people about bleeding disorders that affect YOUR loved ones. It’s a community gathering – to have fun with other people in YOUR community. It’s a fundraiser- to provide programs and services that YOU take part in.

When you walk you make a huge impact. All funds raised in West Virginia stay in West Virginia and are used for:

Programs like Camp Winaca HemoVon and the Annual Education Retreat
Emergency financial assistance for families in need
Advocacy at our state and national capitol
Research into finding cures for bleeding disorders

Join us for a virtual educational event presented in partnership with Novo Nordisk and the WPA Chapter, focused on helping members of the hemophilia community feel more informed, confident, and prepared to have meaningful conversations with their healthcare providers.

During this conversation, we’ll explore:

Challenges people may experience with their current hemophilia A management and administration.
The importance of discussing breakthrough bleeds and concerns about bleed protection with your healthcare provider.
How tracking treatment experiences—including dosing, bleeds, and symptoms—can help you communicate your experiences more effectively.
The value of staying connected with the broader hemophilia community and keeping up with available resources.
How to recognize when you may be making compromises between treatment convenience and bleed protection.
You deserve fewer compromises. Your experiences matter, and speaking up can help you work with your healthcare team to find an approach that better fits your needs.

This virtual event is an opportunity to learn, ask questions, and connect with others in the hemophilia community.

For additional educational resources, visit SpeakYourHemTruth.com.

Come join us for a day of fun, fellowship, and fishing! This special event is designed to bring together families, friends, and members of the bleeding disorders community for an unforgettable day outdoors.

Throughout the day, youth participants will have the opportunity to take part in a annual fishing derby, while families can relax, connect with others, and enjoy the beautiful surroundings of Summersville Lake. Equipment will be provided for the kids.

The Kentucky Hemophilia Foundation invites women and teenage girls to join us for the 2026 Women's Educational Conference & Retreat, a weekend of education, support, and connection for those living with bleeding disorders or a carrier diagnosis.

Who Can Attend

-Women living with a bleeding disorder
-Teenage girls ages 13–17
-Women and girls with a carrier diagnosis

Throughout the weekend, attendees will have the opportunity to learn from healthcare professionals, connect with others who share similar experiences, and participate in educational sessions designed to empower women and young women in the bleeding disorders community.

This conference is provided in cooperation with Sole Health and the (US) West Virginia Chapter of the National Bleeding Disorders Foundation (NBDF).

Registration is required by September 9, 2026.

This year’s Spokes Men for Bleeders will be part of a Fall Festival for the entire family. This is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNBDF. In turn, Steve & Lisa partner with WVNBDF and sponsors to throw a finish line party for the riders and community members.

Families from all over the state will join us for a day of fun crafts and snacks, while they
compete to win prizes! It’s a great way to wrap up the year while bonding and is the last
chance to see your WVNBDF Chapter family before the holidays!