The Annual Education Retreat brings together families from all over West Virginia for a
weekend of education, bonding, and networking.  It includes excellent education sessions, and
opportunities for community members to connect.

Join us at Mia Margherita for an educational dinner program focused on Shared Decision Making in bleeding disorders care. This unbranded program, hosted by Pfizer in collaboration with Next Step, will explore practical strategies to enhance patient-provider communication and improve individualized treatment planning.

Are you experiencing challenges in your hemophilia B Care? Let’s talk about it—Living with hemophilia B can present unique challenges. This program explores common roadblocks and invites you to share your hopes for the future of hemophilia B management. Are you ready to talk about it? Your voice matters.

Join community members from the West Virginia, Western Pennsylvania, and Eastern Pennsylvania Bleeding Disorders Foundations for this virtual education event sponsored by our friends at Novo Nordisk. Attendees will receive a $15 DoorDash e-gift card (up to $45 per family) after attending the entire program.

Program link will be sent to registered participants closer to the event.

The 1st annual Back Yard Brawl Cornhole Tournament will be held in Coraopolis, PA in
conjunction with Western PA Bleeding Disorders Foundation. This event is
specifically geared to raise awareness of bleeding disorders. Proceeds to benefit both
chapters.

Register with the link below!

Camp Winaca HemoVon is a 5-day residential camp for children ages 7-17 who have either a bleeding disorder or a childhood cancer diagnosis. Mission: To positively impact and enrich the lives of children diagnosed with cancer or bleeding disorders by offering a camp experience, independent from their family, in a medically safe and educationally supportive environment while promoting personal growth, self-worth, self-reliance and creativity through activities and the development of personal relationships that will carry over to their daily lives and throughout their lifetime

To register for camp you must make an account at the website linked below and select Camp Winaca HemoVon from the list of available camp weeks.

This premier event will unite patients, families, and healthcare professionals for three days of insightful educational sessions, valuable networking opportunities, and a dynamic exhibit hall featuring leading organizations and research presentations.

We will host a joint event with the Western Pennsylvania Chapter at beautiful Oglebay Resort in Wheeling WV. This will be a wonderful opportunity for community members to come together for a day of fun and learning with members of the bleeding disorders community from Pennsylvania.

The Walk is about YOU! It’s an awareness event- to teach people about bleeding disorders that affect YOUR loved ones. It’s a community gathering – to have fun with other people in YOUR community. It’s a fundraiser- to provide programs and services that YOU take part in.

When you walk you make a huge impact. All funds raised in West Virginia stay in West Virginia and are used for:

Programs like Camp Winaca HemoVon and the Annual Education Retreat
Emergency financial assistance for families in need
Advocacy at our state and national capitol
Research into finding cures for bleeding disorders

Spokes Men for Bleeders is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNBDF. In turn, Steve & Lisa partner with WVNBDF and sponsors to throw a finish line party for the riders and community members.

Join us for a fun day as we enjoy the beautiful weather that Fall has to offer.

Families from all over the state will join us for a day of fun crafts and snacks, while they
compete to win prizes! It’s a great way to wrap up the year while bonding and is the last
chance to see your WVNBDF Chapter family before the holidays!