February 26 | 10:00 AM – 1:00 PM

Join us for Advocacy Day, a powerful opportunity to learn how you can help make a difference for individuals and families affected by bleeding disorders.

During this event, participants will gain a better understanding of the key issues impacting the bleeding disorders community and learn practical ways to advocate for better care, access, and awareness. Whether you’re new to advocacy or already involved, this session will provide tools, resources, and guidance to help your voice be heard.

Together, we can create meaningful change by educating ourselves, engaging with decision-makers, and standing up for policies that improve the lives of those living with bleeding disorders.

👉 Get involved. Learn how to advocate. Be part of the change.

Come join us and our partners from Novo Nordisk and Next Step Specialty Pharmacy for an evening dinner and discussion focused on advocacy efforts and funding opportunities here in West Virginia. Attendees will have the opportunity to learn more about how to support meaningful change and, if desired, share their personal stories.

The National Bleeding Disorders Foundation's Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.

Join us for an educational dinner program focused on Shared Decision Making in bleeding disorders care. This unbranded program, hosted by Pfizer in collaboration with Next Step, will explore practical strategies to enhance patient-provider communication and improve individualized treatment planning.

Join us for a special Education Dinner with our partners from Novo Nordisk, focused on a new subcutaneous prophylaxis (Sub-Q prophy) treatment option for individuals living with bleeding disorders. This informative evening will provide an opportunity to learn about emerging therapies, ask questions, and gain a better understanding of how new options may fit into personal care plans.

Held the evening before our Women’s Retreat, this dinner offers a relaxed and welcoming environment to connect with others in the bleeding disorders community while receiving valuable educational information. Dinner will be provided, and hotel accommodations are included for participants.

Whether you are attending the Women’s Retreat or are simply interested in learning more about new treatment options, we invite you to join us for this informative and supportive evening.

The Women’s Retreat will give women, girls, and people with the potential to menstruate a
chance to share their stories, build relationships, and become more empowered to navigate
the unique challenges that come with being a woman with a bleeding disorder.

The Annual Education Retreat brings together families from all over West Virginia for a
weekend of education, bonding, and networking.  It includes excellent education sessions, and
opportunities for community members to connect.

The 1st annual Back Yard Brawl Cornhole Tournament will be held in Coraopolis, PA in
conjunction with Western PA Bleeding Disorders Foundation. This event is
specifically geared to raise awareness of bleeding disorders. Proceeds to benefit both
chapters.

Camp Winaca HemoVon is a 5-day residential camp for children ages 7-17 who have either a bleeding disorder or a childhood cancer diagnosis. Mission: To positively impact and enrich the lives of children diagnosed with cancer or bleeding disorders by offering a camp experience, independent from their family, in a medically safe and educationally supportive environment while promoting personal growth, self-worth, self-reliance and creativity through activities and the development of personal relationships that will carry over to their daily lives and throughout their lifetime

To register for camp you must make an account at the website linked below and select Camp Winaca HemoVon from the list of available camp weeks.

This premier event will unite patients, families, and healthcare professionals for three days of insightful educational sessions, valuable networking opportunities, and a dynamic exhibit hall featuring leading organizations and research presentations.

We will host a joint event with the Western Pennsylvania Chapter at beautiful Oglebay Resort in Wheeling WV. This will be a wonderful opportunity for community members to come together for a day of fun and learning with members of the bleeding disorders community from Pennsylvania.

The Walk is about YOU! It’s an awareness event- to teach people about bleeding disorders that affect YOUR loved ones. It’s a community gathering – to have fun with other people in YOUR community. It’s a fundraiser- to provide programs and services that YOU take part in.

When you walk you make a huge impact. All funds raised in West Virginia stay in West Virginia and are used for:

Programs like Camp Winaca HemoVon and the Annual Education Retreat
Emergency financial assistance for families in need
Advocacy at our state and national capitol
Research into finding cures for bleeding disorders

Spokes Men for Bleeders is a grass roots awareness and fundraising effort started by West Virginia parents, Steve & Lisa Nick. Steve & Lisa have two sons with severe hemophilia. Years ago, Steve decided to begin a one-day, one-hundred-mile bike ride to bring awareness to West Virginians who live each day with bleeding disorders. All proceeds from his ride benefit WVNBDF. In turn, Steve & Lisa partner with WVNBDF and sponsors to throw a finish line party for the riders and community members.

Join us for a fun day as we enjoy the beautiful weather that Fall has to offer.

Families from all over the state will join us for a day of fun crafts and snacks, while they
compete to win prizes! It’s a great way to wrap up the year while bonding and is the last
chance to see your WVNBDF Chapter family before the holidays!